keto diet and fibromyalgia

Can a Ketogenic Diet Improve Fibromyalgia Symptoms? | Everyday HealthChronic Lori fatigue syndrome / Fibromyalgia Ketogenic Diet Success Story by tention Jun 13, 2017 Silence, Silence (Me/CFS metabolomic findings and reports that high carbohydrate foods have a salient effect suggest that the ketogenic diets - that increase fats and proteins and severely limit the hydrates of carbon/FS Thank you for Lori for allowing Health Rising to post its success story on the ketogenic diet. Lori's not well yet, but she's very improved. As with every recovery/recovery story ME/CFS/FM please note that these are heterogeneous disorders and that their results may differ.) Lori's story I couldn't get over my tiredness. When the doctors couldn't convince me that I was getting older, they diagnosed me so depressed. Lori I couldn't get on my tiredness. When the doctors couldn't convince me that I was getting older, they diagnosed me so depressed. LoriBeginnings In April 1996, in the seventh month of pregnancy, they put me at rest for the hypertension induced by pregnancy. I was a full-time, healthy architect who had been preparing for pregnancy for a year with a normal level of stress. Same week – four states out – my mother was diagnosed with cancer. A single son, deceased father, the following and a half year ended up being blurred to take care of a nurse baby and travel back to mom's surgery and radiation. In the middle of that, I went down with a virus that hit my younger son too. I remember it in my chest, sleeping in my childhood room in a recliner as none of us could breathe lying down. The virus was, the days of doctors and radiation continued. Remission. I repeat. Eventually my husband and I moved my mother to our city and later to a hospice facility nearby. He died two years a week since his initial diagnosis. If the immediate stress of a terminally ill parent is over, new responsibilities of cleaning and selling your home and solving the rest of your estate took an additional toll. One day it felt like a 20-mile walk with a 50-pound backpack, with a little boy. Sometimes my knees would widen, unable to keep me straight just walking through the room. The naps were compulsory, but not restorative. The big relapse Three years later, I was beginning to recover. After my son went to preschool, I went home and lay down. We were able to manage a short family vacation. Then my son ended up in the hospital with complications of a tonsillectomy. The day we brought him from the hospital after a week of sleep (badly) in a window seat next to his bed, I found out that he was pregnant. I cried. I was exhausted and I couldn't imagine myself going through another pregnancy safely. As fate would have, I missed several weeks later. The cycle continued, however, I could not put myself on top of my fatigue. When the doctors couldn't convince me that I was getting older, they diagnosed me so depressed. Anti-depressant therapy helped, but if something fueled my mood, it was not help for the fatigue and inertia I was experiencing. I had not practiced as an architect since my son was born, but at least I had maintained my license and continued education. Now I was forced to become inactive because I could not understand the technical information that required me to study. After a minimum pass to suck and clean the bathroom in preparation for a visit of childhood friends, I spent the next day in a rock chair, trying to reach verticality. I started having pain bengales in my arms and in the upper chest, so tender that changing the covers to return to bed was atrocious. I'm very lucky to have a husband who knew me before. Although I didn't understand what was going on, at least he supported my attempts to find a solution. Even if my cognitive processing had slowed down drastically, I was still a drugged information in the heart. I started looking online and asking for books through the library. I visited a holistic clinic and met the first health professionals who actually *believed* my problems instead of firing them. I learned about adrenals and hormones and supplements and met people who had been living with this so-called "chronic fatigue syndrome" for a dozen or more years. That looked like eternity. 1-Percent Solutions I committed to what I called "1 percent" solutions. If anything could help, I'd give him a chance. If I noticed improvements, I kept it. I participated in a double-blind trial of an antiviral for fibrous. A clinic focused on chronic fatigue and fibromyalgia opened 6 hours away, and finally I had a lot of medical tests that documented a number of potential problems, which were addressed with supplements and medications. I tried Xyrem but I finally stopped. I was living in an existence that at least did not include any new important setbacks. If I protected my energy – and I certainly did – I could spend a well-planned week. Almost daily 3-hour naps were critical, at least one weekend in bed. The improvements were slow, but the fog was raising a little. The clinic was sold, and with the new tariff structure too steep to continue, I was taking myself. I switched to a local endocrinologist for thyroid drugs. Since I could not understand the rationality of my old treatment protocol, my medicine changed. Delivering my huge file to a new nurse practitioner, his eyes practically came out of his head, "I don't know what to do with this!" he said. At least she was honest. At this point it was obvious that I was probably never going to improve significantly. I knew he was one of the lucky ones. I was relatively 'high running': I could handle up to a 20-hour work week, and perhaps a minimal domestic work. But if my schedule changed abruptly, even one event or change of plans, stress would eliminate me for several days. Florida's heat and humidity were also miserable. Even mental concentration led to perspiration, which led to dehydration, which resulted in pain, which led to my dream 20 hours at a time. Sleep HelpIn October 2015, my husband recommended seeing his pulmonologist schedule a sleep study. He had two sleep studies before (which showed "the very disturbed sleep"), but this study indicated that he had a combination of central and obstructive sleep apnea. Finally, I had an auto-pap, a specialized type of continuous positive air pressure machine (CPAP) that adjusts the pressure on the basis of continuous feedback. I was no longer waking up with my heart beating and headache when my brain "forgave" to tell my diaphragm to breathe. The hope that CPAP treatment will lead to a waterfall of benefits – better energy and weight loss did not materialize. I'll settle for better sleep. In early June-2016 I had the opportunity to start swimming. By swimming, I mean 'get in cold water and move a little'. It was a great relief to get a break from Florida summer misery. He could stop the transpiration episodes faster, and so, he managed to decrease a little pain. I got hit where my arms were even with or under my helped heart. The trail was out – I couldn't breathe, even at a snail rhythm. The ripper, the lazy setback and a modified dog whirlpool were my friends. Floating was the sky. At least he was outside. Even as swimming provided relief, and with 15 pounds. it went from mild exercise, my weight was still up to almost 245 (I am 5′-10′), 95 pounds. above my lower adult weight. I was taking two antidepressants and thyroid medication, and I was still having days when I was in bed more than I was out. If I worked, it was in the afternoon because I couldn't drag myself out of bed until noon. And every morning when I woke up, I thought if I felt that way when I was over 50, the rest of my life seemed pretty shady. The nutritionist In September, my husband came from a checkup with his cardiologist with a mandate – to see a nutrition counselor. "She will change your life," her cardiologist said. When my husband came from his first date, I read the material they gave him for the program of 'low meat, high fat (moderate protein)' (LCHF) that he was going to try. Before this, if anyone had said that he would ever give up the carbohydrates, he would have laughed in his face. But when I read that LCHF can be beneficial for inflammation I decided to keep my husband in search. We purged the pantry and the refrigerator. Our new limit was about 20 grams of carbohydrates a day. Within a couple of days, the reflux that struck my nights was gone. Within a few more days, the pain in my arms was reduced by 90 percent. The brain fog began to rise. My husband and I went on vacation and we stayed faithful to the plan all the time and got home having lost weight (!). Not even a couple of items out of the plan during the holiday season changed my progression to health. A Lifestyle Ketogenic A cetogenic diet has not been a 1% solution, but much, much more. I feel like an entire person again. The LoriA ketogenic diet has not been a solution of 1%, but much more. I feel like an entire person again. LoriFor this time, I was monitoring the morning glucose and using a breathing analyzer for signs that I stayed in cetosis – when the body has made the switch to use the fuel created from carbohydrates to fuel created from fat. Insulin production, without carbohydrates to induce it, fell. Having overcome the "kéto tap" of adapting to fat burning by paying attention to the proper intake of salt and magnesium, now (miracle!) was no longer tempted by carbohydrates, or even hungry very often. Fats play a bigger role in cetogenic diets than in other diets I started a soft form of IF (intermittent fasting), which means I stopped eating after dinner and had nothing except water or broth until 9am. It was a natural progression not to need to eat every few hours. If my body was a fuel truck, it no longer depended on the gas tank 'carb' – my body was drawing directly from its main body fat tank for energy. I started waking up at 7 in the morning after 8 hours of solid sleep. And I was awake for the day. I would do patio work (YARD WORK!) or whatever it was necessary to do, then have a cup of coffee with heavy cream. I might later have a omelet with sausage or bacon. For dinner we could have roasted chicken (with the skin), and a large salad or broccoli with cheese. I've even found a low-carbomba dark chocolate mousse for special occasions. A "Excellent Patient"Last week I saw several doctors for the first time in many months for most of them. My endocrinologist checked my weight loss (low 50 pounds since last year) and told me he had done his day. My family doctor was very happy to see my triglycerides at 70 (more than three times that number) – he gave orders to perform additional tests to determine the size of cholesterol particles, as cholesterol has increased. Although I had never mentioned it before (when would I tell me that I was pre-diabetic?), he said that my previous 118 fasting glucose has been reduced to 83. I don't have any reactive hypoglycemic episodes anymore. My pulmonologist said he was "an exceptional patient." I have dropped (with the doctor's address) to a half-dose of an antidepressant, lowering full doses of two medications. I felt like they were hitting gold stars on my forehead. When I read an article on Rising Health, I was far enough on my LCHF journey to appreciate the idea that for some of us, the processes that allow our bodies to make energy can be broken, and that alternative fuel pathways can allow for work-approximately for some of us. That seemed to make sense for my recent experience in changing my food. In one of the biggest clichés, I haven't felt so good since I was 20. My belts ran out of loops. I had to replace around a room in my closet. When I asked my husband to describe the changes he had seen in me, he said he had no double or triple increases in energy, but "exponial" increases. I agree with that. I got ambushed Since October I've read a lot about science behind the benefits of a LCHF diet. I've never been a runner, but during a video describing the differences between athletes in a LCHF vs regime. those who bear carbohydrates carry a marathon, I learned the word 'window'. The term is used colloquially as a noun ("with the bonk") and a verb ("to rebound half the race"). The condition is also known by long-distance corridors () that usually refer to it as "trusting the wall". The British may refer to him as a "famine name", while "huncho de hambre" was used by South African cyclists in the 1960s. It can also be called "destruction". The term is used colloquially as a noun ("with the bonk") and a verb ("to rebound half the race"). The condition is also known by long-distance corridors () that usually refer to it as "trusting the wall". The British may refer to him as a "famine name", while "huncho de hambre" was used by South African cyclists in the 1960s. It can also be called "destruction". According to Wikipedia, bonking refers to sudden fatigue and loss of energy caused by a depletion of glucogen stores in the liver and muscles. In other words, hitting the wall. The athletes who are fed with non-bonk fat. Since the last two decades for me have been essentially an endless bonk, relief has been amazing. In addition, the presence of ketones in the body has been found to quench the response of inflammation that causes so many problems. A cetogenic diet has not been a solution of 1%, but much, much more. I feel like an entire person again. May – June 2017 Update This was written in February. Since then, I am at a fourth dose of my remaining antidepressant with the supervision of my doctor. I'm closing in 60 pounds lost and I'm finally at 200 pounds. Line skates – a reward for crossing the threshold of a land-by-a-foot – await. I recently returned from a one-week retreat where I had no control over food preparation. Through making good decisions alone, he was still in ketosis on arrival at home and had left an additional pound for a new bass. I'm still painless. My "energy wrapping" continues to expand, although it is not boundless. The exertion that includes heat/humidity requires several days to recover, although the level of fatigue is considerably reduced. For a stranger, I probably get a little tired but normal. In a completely unexpected turn of events, the 'chicken' on the back of my arms has gone completely! I track my food in My Fitness Pal, usually staying within the accepted range for a way of eating about 20 grams of carbohydrates a day of whole foods. My husband and I are still together a way of eating cetogenics. In June I started to increase my swimming at least 5X a week (1000 hits each) and I'm working at least half an hour, with a full summer ahead. (The office building where we are will be made in a bed breakfast, so we will move, with a full board of projects in the books to stay on. I love to be back at work with my husband.) Besides, I've crossed the "extranjero" line, having finally dropped 200 pounds. My online skates, which I promised myself as a gift to achieve this, are now MINE!!! Lori The free online The Keto Summit begins on June 15 The Keto Summit presentations can be seen free – the day of the presentation – for all those who register. If you want to see the presentations at your leisure, you can buy the Summit. Some of the things you will learn include: Many Summit presentations are practical advice for cetogenic dieters, including "Practical Keto", "How to interpret your blood and laboratory tests," "Why water is critical," "What to do if your Keto DIet is not working," "Ketogenic Diet Pitfalls", "The Myths and Facts of Supplements", "When using or not using a Keto Diet." Under Carb Down Under (channel) Inflammation and low carbohydrate high-fat DietNames for other videos (search "keto" plus the following names): Stephen Phinney, Jeff Volek, Eric Westman, Thomas Seyfried, Gary Fettke, Tim Noakes, Dominic D'Agostino, Sarah Hallbert, Robert Lustig, David Perlmutter More Dietary Resources Tell us how your coronavirus vaccine went and find out how other people with ME/CFS and/or FM got stuck with their coronavirus vaccine in Like this blog? Make sure you don't miss another one by registering for free. 60 comments It's great that it's so good. But if simply going on a high-protein low carbohydrate diet was "sufficient" to bring energy and health back to ME/CFS patients we would be seeing a lot more people getting better. It makes me wonder if I just harmed the production of energy and the thyroid problem or a definable case of ME/CFS. There are many mitochondrial genetic disorders that are not ME/CFS. I actually think you could say something about every recovery/recovery story. If it were just antiviral, or taking large amounts of iron, or avoiding the mold, for some people the right combination of rest and mind/body therapies... we would see many more people getting better. There is no "only in anything" in these diseases – they are too heterogeneous. However, if you have not tried a cetogenic diet – it is probably a good idea to try one... It's not a panacea for me, but I feel a little better. I have a girlfriend who has really improved immensely since being on this diet, but had also withdrawn from work around the same time, which in itself is a big problem when fatigue is your problem. I found that the diet change didn't help me so much, and it might even have resulted in a kidney stone. I am a vegetarian and ate quite well anyway, with more fats and 'good' proteins, compared to its 'typical American recipe' of coffee and carbohydrates To add to the point of Cort; I am sure that the cetogenic diet is part of my own success story and others as well, but in all cases, it is not the only thing. I've never heard of anyone making significant improvements without making a combination of several things. In addition to the ketogenic diet, I think it is all important to exercise the correct intensity, as much as possible. It seems to me that Lori is doing this, if even luckily instead of careful design. Supplementation is also important, and in my case I would have to say that magnesium was very important, but I needed to continue to increase the doses, and then it became important to balance other elements as well, using Hair Tisue Mineral Analysis as a guide. Approx. 70% of the fibromyalgia patients also suffer from the depletion of the adrenal glands. Keto is a modest protein of high fat and very low carbohydrates. The macros are 75%, 20%, 5% respectively. It's not a high protein that, it would be Atkins! LCHF / structured experimentation worked for me. I am absolutely convinced that CFS is a metabolic disorder and that the symptoms are mainly due to cellular starvation (aglutination ... also seek the symptoms of catabolism). Driving insulin by lowering high carbohydrate fat makes a big difference... possibly by stabilizing circulating nutrients. In my case, LDHF was not enough. I also avoid processed foods, keep up foods of low insoluble fibers, low bacterial count foods, and eat lunch as the great meal of the day, and keep small dinners early. Just like breakfast if I'm hungry... fasting 18 hours/day is great! Reasonable activity is very useful and eating is absolutely necessary after a larger training ... Yeah, you can be active. You just have to eat later. Weight loss and not being so hungry was a happy side effect. Figuring what works and what not for you is key... individual differences seem to be great... test. approaching this as if you were a baby... I mean, you don't know anything. Thanks for sharing it. How's your health now? I've also had a great success with the keto diet. There may be some very simple reasons why more people are not reporting positive effects. First, it's a pretty extreme diet. I've had literally trouble finding enough fat to eat sometimes. We're not used to eating this way and frankly, it feels bad. But if you don't have enough fat, you won't stay in ketosis. Being in a low carbohydrate diet but not in a state of cetosis is hell. In fact, I would say it could be a way to explain to people who don't understand our conditions how it feels! Second, he mentioned the Keto flu. A lot of people have a bad time trying to get into the state and adjust to it. Symptoms could be overwhelming if you already have CFS. I quit the first time I tried a ketogenic diet for that reason. Luckily, if you get enough salt and a couple of other minerals can minimize that. But once you sit down for what you can and can't eat, it's amazing. My PEM is still present after almost a month in the diet, but I'm working again 1/2 time. I can feel my strength. I don't know if my body will be able to completely fix it, but I can fully answer for its history. It's a massive improvement. Last year I started preparing a study to test the keto diet in Mendus.org but it was skeptical. I'm no longer and I'll get the studio to go as soon as I can. Congratulations! Looking forward to hearing more, including how hard points were overcome. I have to disagree. You say if this diet was all she says it is, we'd see a lot more people getting better. People are supposed to try it and prove it in the long term. We know that's not true. Look how many people know smoking is bad for them, but do it anyway. People who are overweight know what to do, but millions don't and continue to eat the foods that are bad for them. People often don't do what's best for them. In my experience, people are much more likely to depend on what the doctor does for them to take things into their own hands. Especially with conditions that are difficult to diagnose and that had a label of "everything in the mind" people will take drugs that are offered because it gives them a sense of validation. When you have been sick for a long time we often just surrender and think that this is our lot and some just don't have the time, money or ability to study for themselves and find out what else can help. I think it's pretty obvious that the diet will be the answer for many of our health problems. There will be no single size that fits everything because we have multi-fact problems, but there will certainly be diets like the LCHF that will certainly make life more alive and will definitely be a cure for some. If the problem is with mitochondria no matter what the label, the symptom will be energy insufficiency. $9.99 for a book in Amazon I suppose this answers to this topic.Did anyone here see the summit when it was first issued? Was it helpful? I have gone under-carb (not keto) sometimes, and it feels very good. But I get terribly constipated. How is this? Magnesium. He almost certainly needs it as a supplement, and in large doses. Going Ketogenic also reduces hydration because sugar plays a role in this, and as Lori says, you need to use Magnesium to compensate. Increase the dose "until the bowel function is restored" is probably as good a guide as any. I also have horrible cramp muscle cramps (mainly in the morning) until I had the high enough magnesium dose. Potassium and sodium matter also if you don't get enough of them. I recommend the mineral analysis of tissue to guide these supplements more accurately, and you will also discover what other elements are exhausted and what toxic elements are high, which all helps to work the best treatment and improve the condition. One thing to remember, you don't always need to take magnesium orally. It can be very relaxing to sit in a bathroom with Epsom salts – magnesium can be absorbed through the skin. I also had the cramps of the leg – it will still do it on occasion. A massage therapist gave me a tip that sometimes works – if you're in the middle of a calf cramp, place the leg's foot not scratching on the other foot. With the cramp leg, do your best to push up at the bottom of the 'good' foot while pressing with the 'good' foot. You can unlock muscle spasm. Obvio also has a clear 100% undiagnosed case of the Ehlers-Danlos syndrome even in the above-mentioned exercise that maintains swimming or roller blades is identical to what EDS patients can do in certain stages, she is still trapped in the CFS-type diagnosis that undoubtedly has a connective tissue disorder a Genetic Born condition. I don't consider it recovered at all... You may be right, but Lori could also be a totally typical CFS case making improvements. I am a FM case, not a CFS case, but your path to improvement is very similar to mine and I am definitely not an EDS case. You wouldn't mind a good bonk... I'm sorry you couldn't resist? Very happy for Lori. I just started 2. Issues Any suggestion for 'constipation' I'm taking tons of wax and magnesium salt. 2.any ideas for affordable keytone moniterring Thx for the article and its website Tc dan Standard constipation things – take a solvent fiber supplement, for example. Benefibre here in Australia, and or use a slippery elm supplement. I have no personal experience with constipation of this or any diet, if anything my problem was on the other side. Tone control. Depends on how you define affordable? The cheapest but less reliable option, but I think most people use it, it's saliva strips or urine strips. I've ordered a $50 diabetes blood test kit for accuracy. I think I need to keep buying more strips, possibly 1 each! I hope I can find them cheaper. But with blood you can do once a week to check that you stay in ketosis. I've only been doing Ketogenic for three weeks. I've lost some weight. I wonder if I'm really in ketosis. I find it easy to follow as I enjoy the food and feel full. I almost don't feel like I'm trying to cheat. I don't know if my energy has improved. I started this without that as a factor, I just want to lose weight. When I introduced my story to Cort, I told him I would monitor the comments and try to answer any published questions. First of all, I am not surprised at the kind of comments "that should not have what I have" and may not, of course. I'm flexible on my hips and legs and fingers, but I don't have ED. I started swimming for heat relief, and at first, I would do some neck stretching, or just float. That was my "return" at first. It took me a year to work up to 1000 hits, and I can't do it every day. The previous photo was taken when I was testing my new rollers at the back entrance. I haven't been off my property, and it's too hot here to skate alleys – it'll be another six months before it's great enough to skate. As to the comment "if simply going on a high-protein low-carbohydrate diet was 'sufficient' to bring energy and health back to ME/CFS patients we would be seeing a lot more people improving," I want to be clear that this is a low-carbohydrate FAT diet – protein is adequate, but not emphasized. About 75% to 80% of my calories come from fat. At no time during the article I said I was cured. I have been in this a long time – many treated (and discarded) therapies for a couple of decades. Yes, I may have finally mixed up quite a few of my 1% solutions so that a cetogenic diet will serve as my turning point. Aiden, Cort asked me if I could recommend some resource, so I've listed some for people who don't know what a cetogenic diet is. At no time was the intention of suggesting a $10 book to cure you. Madeleine & Dan – the problem of constipation... I have a lot of coconut oil on my diet, so it's not that much a problem for me. I don't use many exogenous ketones (although I will if I feel I have overdominated and my body doesn't stay); however, my husband has succeeded for a dose or two of MCT oil. Lucy – 😀Hi LoriDid you ever have alodynia, which also drains my energy. Besides, I found out my cholesterol is getting high and I have proteins in my urine. Do you think it would be okay with a high-fat diet? Should I have the good fats or the bad fats like you did with chicken skin? I hope you keep answering questions! I just found this article while researching fibro and keto... as I'm lying in bed with another flare. Very interested in knowing a current update on the state of ur and if it is still in keto. Dan – about monitoring. I have a breath analyzer, but it's expensive, and sincerely, *how* you breathe in it is very important, and it didn't seem to naturally have the backpack to get air out of my lungs without feeling that I was suffocating. I've made my peace with her now, but I'm never in the rank of high red. Maybe that's normal for my body. The urine strips are the cheapest, but there are some inconveniences... if you are using exogenous ketones (such as MCT oil), you may be measuring that coming out, not if your body has completely adjusted in fat adaptation. Some say they stop working after a while, some say it's a bunk. They still show me a ketone level. Not everyone is overweight (my situation), and I can't tell them what they should expect the results to be if they're in ketosis, but they really use ketones so they're not being excreted. Sadly, the gold standard is blood monitoring: if you have circulating ketones. I know that the strips are tremendously expensive. I haven't used them, and those who do it can check once a week. If you're starting, I'd go through the urine stripes. Just don't worry about not being at the far end of the color spectrum. Anything other than neutral control is ketosis. They're meant to monitor cetoacidosis for diabetics, so they just realize that. For me, it has been so useful to monitor blood glucose, and that is (in relation) cheap. P.S. None of the websites or books or videos are mine. I presented them as potential references. The keto summit isn't mine either. I'm so glad Lori feels better. I tried the Ketogenic diet last year and got sick. I think everyone is different and I understand why people are looking for that thing that will relieve them of their symptoms and make them feel better. Maybe this diet works for some but not for everyone. I found that the diet presented by T. Colin Campbell (The Chinese Diet) a low-fat diet, based on whole-food plants is working for me, at least I'm noticeing an improvement in my fatigue levels, but that doesn't mean it fits everyone. I think it's very important to hear our own bodies. A long time ago, a naturopath told me that when it comes to treatments it is important to try one at a time. That way, you know what the blame treatment is. To be honest, the beginning of the keto can be rocky, mainly due to low electrolytes. I had nausea to the point where I didn't want to eat sometimes. Fortunately, they warned me to watch this and what to do. If my level of pain or fatigue had increased, I would have left keto as a hot potato. I read somewhere that because the body stores fat hormones, and fat is what comes out of the cells to be processed in ketones when in a cetogenic diet, our hormones can also feel quite rocky. I don't know if this is true, but sometimes it felt like it. I tried to get out of my last dose of antidepressant, but after 3 weeks off, I had to admit that I was completely 'loaded for bear' and that I would benefit from going back to (a lower dose of) AD and staying in it for a longer time. My body told me well and clearly, but it took me a while to listen to it. Me too – all sorts of clumsy side illnesses for several months while I lost weight. Part of this is that your fat may have many toxins deposited in it, when your kidney system is overloaded or impaired in your ability to deal with toxins. He would have had 25 years of toxins stored there, people who approach the right approach early in their lives bounce much faster. I'm still getting erupted here and there after 3 years, I think this is because deep toxin deposits, for example in the muscle tissue of the large and immobilized core and the abdominal fat, are still being pulled out. Feldenkrais' treatment is getting me good gains in posture, control and balance and range of movement, but I'm sure that more toxins are getting out, going somewhere else until they are also processed by the kidney system. I think regular low-intensity exercise and simple movement is important to keep the toxins moving instead of depositing in a place. Yeah, just "moving in the water," in the first few days, it's part of my story too. The even more useful spa pool due to heat – but the problem with overheating hours later, needed to be mitigated by making the spa first, then the main pool, where I cooled. Be careful to cook your vegetables. Everyone is recommending Mediterranean diet. No one is telling you that the Mediterranean traditionally cook their umbrellas, kale, spinach... Night shadows contain poisonous alphasolanine that is destroyed by the kitchen. Think: Mediterraneans eat many night shadows. If they were as bad as they were, they'd all be crippled. They're not, because they know how to prepare their vegetables. Tomatoes? When they are mature, they contain much less solanine. If someone is considering this ketonic diet first be aware that high levels of protein put a lot of pressure on the kidneys and the liver, also take into account that animal proteins are linked to inflammation in the body and inflammation of blood vessels endothelial cells However, the proteins and plants of the plant generally reduce inflammation. The good news is that you can still make a safer high protein and a high-fat diet in the vegetable-based diet, that is, a vegan ketogenic diet. Some of the best fats come from flaxseed oil and other lipids that can be obtained from 'Aceite de Primrose de la Invención', 'Aceite de avocado' 'Mantequilla de cacao' etc all with different ratios of omega 3, 6 etc. I know that ME/CFS patients cannot be body builders, but it is worth checking the group of vegan bodybuilders called 'PlantBuilt' who recently won 32 medals collectively during the Naturally Fit 2017 Games. Vegan body builders win 32 medals in 2017 Fit Games Here is a link to plant-based ketogenic vegetable diet Again, a cetogenic diet is not a high protein diet. It's a high-fat diet. Like about 20 grams of carbohydrates a day, that's about 5% of my carbohydrate calories. 75% to 80% is fat. The balance (15% – 20%) is protein. Okay, I'm showing that you can do without animal products, if people take a look at the fats I mentioned from certain plants have very good omega relationships. As to avoid carbohydrates some of the vegetable protein powders are 87% of proteins. Many plants are low in digestible carbohydrates as well, such as green leaf vegetables. It is important to be aware that animal products can appear to the immune system as a foreign body, which can trigger inflammation and worse could cause 'reactivity of corrosity' which means that our antibodies could attack similar proteins that our own body produces. Which is a hypothesis for some autoimmune diseases. I suspect that the ME/CFS is a rogue antibody that is attacking a by-product (i.e. protein/peptide/metabolite) produced from our own cells (probably neuronal/nervas) during exercise. Some people may not have that problem, but others may do so, so it's worth knowing that there is an option based on alternative plants that can be adjusted to fit a ketongenic diet. You can help you know that I am a Rich Roll fan and read your blog, even if it's an omnivore. I would say that most of my carbohydrates on a normal day are veal, and a good bit of my fats are nuts/seeds (macadamias, especially, but I keep for a day about 20 grams due to carbohydrates). Although I do not disagree with you in the inflammatory effect some may experience, for me the benefit of turning off insulin production and thus shutting down the inflammatory response through cetosis has been a godend. I'm lucky you don't have problems with dairy too, as that can also limit options. From time to time I take a detour from the road, but this has led me to * above all* a full food menu. I have a bucket of powdered protein – the lowest carbohydrate I could find – but I haven't used much as I don't like the texture/flavor. Whether it is a ketogenic way of eating is possible, while only plant-based is a common question in some keto forums. In general, it is said to be feasible, but more difficult, with more preparation and research. Lori, thank you for sharing. Before going well, he experienced neurological symptoms such as: tremor, restless leg syndrome, tinnitus, visual powders, dizziness, urinary frequency, night sweat. Did you have low fevers? Extreme sensitivity to heat? Did you feel the best of the night (in a typical day)? I am thinking that these individual stories and careful classification of symptoms can help us define subgroups – which seems critical for better understanding. Hi Merida – First, I would qualify myself saying that I don't consider myself well, maybe just "welcome." But before the bait: trembling – occasionally, usually related to the reactive hypoglyemia, although my endocrinologist was worried that it was the thyroid medicine; RLS – yes, although it was a good decade since it was a problem and I took the medication for it; tinnitus except – Yes, it continues, although it has been quite a bit... it was triggered as crazy when I left the last antidepressant That last part has really changed. Now I wake up normally at 6:30 and do a couple hours of things related to the house before going to the office. Hello Lori, I'm happy this works for you, I wonder how long it took before you noticed the improvement of your symptoms, not just to lose weight. I made a year-old elimination diet for intestinal problems that were not carbohydrates and lost weight (alth though it wasn't that much overweight), and I still stay mainly with the diet but I haven't had any improvement in my symptoms (I've had M.E for 25 years). I like a v v v small amount of carbohydrates since I did not find carbohydrates at all made me feel very bad. Like flaxes and chia seeds for constipation problems. It's a bit complicated since there are plenty of vegetables I can't eat, (I also follow the FODMAP diet for my intestinal problems) and I definitely can't tolerate coconut oil. My fats are nuts, seeds, dairy, butter, oily fish and meat, but only as red meat once or twice a week. Thanks for your help, Michelle depends on the symptoms, actually... the first to go was GERD, and that was virtually immediate. It took a few weeks to dispel a great 'area' of pain. What I mean is that most of my pain was on the chest level and up (including arms). There was also a large muscle pain in the legs and back, but it was less intense on a regular basis. Then they left me with pain in my hands and wrists, which could be horrible sometimes. That took 5 to 6 months, and I was surprised when it was because I didn't think I would since the rest of the pain had disappeared pretty early. As for the fog of the brain, I suppose it started to raise a few weeks and it got better and better. Probably when I became firmly adapted fat. Energetically, probably the same, with a couple of months in really starting to notice that he did not think of naps and would voluntarily begin tasks or projects and follow them until their completion. I am at the point now (8+ months) that there does not seem to be a rhyme or reason my body decides to focus on. I'm losing weight, and that's great, but I started keto for inflammation, so that metric is a success. Because of all the health problems I have had, my body has a lot to cure. So if I get stuck in weight loss, I might notice that suddenly my skin is soft and not so dry. The sensitivity of insulin is huge for me, so I think the huge cut of carbohydrates has taken stress from my body that way. My level of energy, although it certainly improved a lot, even better it doesn't fluctuate as wildly as it used to. I'm still going to find some food that turns out to be something that should keep me away, but at this point, I have a good safe food list that I'm staying. I'm getting better by combining them! When you say "without carbohydrates" do you mean any grain, or are you avoiding things like cauliflower and blueberries, despite their small amount of carbohydrates? I have always felt sick with low carbohydrate diets / low fat/high protein. I would get symptoms of the type of blood sugar accident. I found low carbohydrates / moderate/high fat has eliminated those side effects. The keto diet says "20g" of carbohydrates, but that's really a top lid. Some people make the mistake of trying to do it. I think it's just to allow the time that you'll have a lot of carbohydrates in the green vegetables that you'll need to eat for nutrients. Since we are hypometabolic and cannot use carbohydrates properly for energy, why not try this diet? We love our carbohydrates, but if I could give us some of our lives back, it would be worth it. No bad side effects. Why not? It's been clear to me since I got sick that carbohydrates aren't good to me. If I ate candy, I had to have something like peanut butter with them or I'd feel weak. Starchs like potatoes and grains tend to make me exhausted. I just didn't think I had the discipline to lose carbohydrates. It wasn't really as hard as I thought it would be. Eating as much as you want almost compensates for the lack of sweet things. 🙂 I was lucky it was the right time to do this, and my husband was already, so we strengthened each other. If someone had told me a year before that if I would change what I would eat and the pain would disappear, and I would have energy and not nap, and I would lose 60 pounds and go back to work, and I would laugh. I was mentally prepared to try, and I did my homework first. In addition, my husband and I see a nutrition counselor who helped at first know what the potential difficulties would be. Those visits are also good accountability. Lori, Thanks again for your useful comments. A cetogenic diet was suggested to me by a two-board certificate doc (in medical nutrition). My niece is doing this cetogenic diet and lost 100 pounds – she was very overweight. And at least one of your children is showing some of the signs/ symptoms that everyone seems to share. Wow – 100 pounds! Your niece will be a great resource! I have a "autoimmune" cookbook for Christmas. It's Paleo without eggs or dairy. Many saturated fats, proteins and vegetables/fruits. No carbohydrates or sugar. It made a big difference so it's worth trying for anyone. As for pain and sleep problems, try medical marijuana if you can. I have been able to lower or remove some medications thanks to this combined approach. I'm a lot better cook than I used to be. I used to be a baker (we are!), but now, without bread, without cake, without pasta, so I had to learn new things. It's amazing how good things know once I have that 'sweet' yearning out of my day! I tried a very low carbohydrate diet with my specialist's advice. It took a month (with dangerously low energy) to start burning fats. It seemed to be done through adrenaline – I constantly developed tingling / frizzing hands, and sleeping everything but disappeared. I felt desperately hungry all day. My brain was clearer somehow, but sleep deprivation was an equal problem, plus it was on the edge all the time. My original symptoms. I couldn't tolerate these new/old symptoms for more than a few weeks so he quit. How was your fat consumption during that month? So I've read the hunger seen while making a low carbohydrate diet you can take care of eating lots and lots of fat. That's my experience too. It's critical to eat a lot of fat. Very high, but he did nothing for my hunger and did not seem to burn it by energy (a characteristic of ME/CFS is the metabolism of poor fat, I read somewhere). I used to be able to lose weight at will without great difficulty... Adrenaline can certainly be a problem. There is something called "badly seen home" where your body will put cortisol, then adrenaline, when your blood sugar is lowered. During the day I was not upset because I decided when I was hungry or anxious that I would eat something with a lot of fat. It was more of a problem at night – like waking up too early and not sleeping because my body said my blood sugar was low. A long time ago, when I worked with a naturopa for cortisol and adrenal affairs, I was tested by Seriphos (the original formula) which is said to quench the excess production of cortisol. I hadn't taken anything in years, but I figured it out again after starting keto just for this reason. He's helped enough to keep me in Keto. In *general* I sleep much better in the long term. I actually dream very different from the last 20 years. I don't even think I'm moving so deep. It was 9 hours last night, and although I know I dreamed, any memory had gone as soon as I was awake. Before, I had had complex and vivid dreams with hangovers of dreams that lasted at least until the next night. Somehow, I miss it, because they were so entertaining. But I like to sleep better. Once a week I have a night when I wake up at 3:00 and I have too much adrenaline that's going to fall asleep, so I'll do the clothes or something for a couple of hours. My husband has the same problem, but he doesn't do the laundry! I suffer from night hypoglycemia in a low carbohydrate diet – a lot of night sweats, terrifying nightmares, many every night. That's just enough to deter me from trying a cetogenic diet again. The opinions on Dr. Myhill's protocol? Why or why not? Is there a nutritionist or someone in the United States who can work remotely or someone knows about someone in the northeast of the United States (I'm about an hour from Syracuse, NY)? He stabilized me in 2012 in the year 13 in illness, when the proverbial hit the fan. Massive relapse followed by all kinds of new problems such as sleep apnea, weight gain, back problems, cognitive, all the worst symptoms. It's just now that I'm investigating what's new in the ME/CFS research treatment and I'm gratically surprised, so maybe this is an uninformed question. Another resource for people to consider is Terry Wahls's "Warhls Protocol," M.D. She's a doctor who came down with M.S., and by changing her diet she's gone from being in a wheelchair inclined to cycling to work. Your feeding plan sounds a lot like what is discussed here, with an additional emphasis on eating a wide variety of vegetables (and many of them) for nutrients and micronutrients. One thing I like about her book is that she establishes a carefully developed plan for transition in a keto diet, including menus. I have improved a little in the first 2 stages of your feeding plan, although I am not close to 100% compatible. I've also lost ~30 lbs and kept it out for a couple of years. So there is no miraculous cure for me, but another 1% improvement. The next thing for me is to touch the keto part. Lori, thank you for sharing your trip. Although the ME/CFS can be many different conditions, the stories of hope are extremely important and you never know when one could recognize one another's story. Since energy is such a problem, and it takes a lot of energy to make a change, for me it is vital to hear about the different paths, what they imply, what the results were for the suffering companions. I need to know that there are many different pathways for partial recovery – it allows me to keep trying. Thanks again for sharing. Hello! CFS/ME FIBRO suffers moderate to severe for more than 10 years. I recently started the Keto diet 4 weeks ago agao (60kg) 20g carb 50gprotein 90gfat. I suffered flu symptoms for a week and felt worse than ever. Then he felt bad again. I don't know if they're testing me. Use urine strips that show moderate ketosis.. I don't have a Gall bladder and I often felt liver, but this has decreased a little since the beginning of the Keto diet. Is it okay for me to continue without a Gall Bladder and can you give me some help and advice? many that KS, Karen I just started with the keto diet 3 weeks ago. My interest was provoked by his story, Lori, and I began to investigate the possibilities. I have lived with ME/CFS since 2003, along with a number of other problems: obesity, diabetes, depression, cardiovascular disease. I decided that the keto diet was the best choice for me because I want to lower the sugars in the blood and blood pressure. So far I feel that it is going well: the use of urine strips shows a consistent ketosis since day 2, and I have lost a little weight. I haven't felt any energy improvement yet, but I don't feel any worse than usual. I am a beginner so I want to see what they bring a few months! only a woman of thought " any genre dragging her back pendant feeling miiiiiiighty lowwwwwwwwwwwwwwwwwwwww dilo again doctah ahm feelinn powerful lowww a middle-aged type, enquimal as a train before with 11-inch forearms wt 117 in socks & skivies, noticed the bloody muscle cramp in the factory round age 55 small leg baker muscles, increased fatigue & caca in the last third of the working day, (only Tuesday) less skill in my classic guitar hobby Hypothesis to men, as a rule, to be treated by Dr. Bluecoat, whatever hell it is like a dead mouse, can't be discussed with them, don't listen,40 years of medicine 'cut new treatments in ' take you choose from the great medical centers of the city,, donbother me son,times a wastin you aint Lori, In the last three years the symptoms of ME/CFS have ruined my life. Now I'm out of bed and I'm doing better. I still can't work much but my quality of life is better. Over the years I have been looking for other people who have been helped by a low carbohydrate diet and their history seems as much as mine. I think we can have a lot in common. Thanks for writing your story. I can't tolerate high carbohydrate food or I feel terrible. A slice of cake can make me feel bad for days. I like your idea of bonking that's what I felt too when I was in bad shape. Like you, I have a cpap machine that helps me sleep and now I just sleep 8 hours a day. I've only won 20 pounds but after losing 10 pounds on a low carbohydrate diet I'm starting to feel better. The cholesterol level in my blood is very high, but statin drugs make me feel terrible. So I can't take them. I had a CAC scanner and I have no concern. The only pill I take is magnesium 300 mg a day. My sister also has ME/CFS as 3 of her children. How have your energy levels been since you wrote your story in 2017? Trackbacks/PingbacksSend a comment Your email address will not be published. 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Does anyone have experience with keto that has fibromyalgia and chronic fatigue? Does anyone have experience with keto that has fibromyalgia and chronic fatigue? For the last 7 years, I have had fibromyalgia and chronic fatigue. For anyone who is not familiar with chronic fatigue syndrome, don't let the name fool you. It's been a severely debilitating disease. I would describe the fatigue so severe that it can be mental alteration. It's not like being regulatedly tired where you can take a nap and feel better. It has been described as a "believable but tired" feeling where you are exhausted, but you can't sleep too. Fibromyalgia is also a struggle since it usually hurts everywhere. It's like having the flu when your whole body hurts, except every day of your life. I've tried a lot of different medicines but nothing really works. In the past I have tried Keto for a month or two to the longest. At first it always seems to throw away my brain and my body even further away. At first it makes me more tired. After 3 weeks of not seeing a significant improvement by sliding back into the carbohydrate and sugar mode. Because of how difficult it is for me this has led to a dozen attempts to get back to the keto train. I usually die my teeth and fight for a week or two and I end up giving myself. It's very difficult for someone like me to know what the right amount of carbohydrates is to keep up. Getting into Keto makes me feel bad, at least at first. It feels like a hanging where I need to drink 17 gallons of water and I feel dizzy and I have pins and needles on my wrists. Having episisodes like this is usually what leads me to say 'bad, I'm going to have a bagel. 'If someone has experience with CFS/fibro and good luck with the keto diet, please help me! Thank you! My husband has fibroids. It makes it much better with keto than with him. It may take several weeks to adjust and "tomato effluence" when you start is normal, although it might make your fibrous blink, in which case you will have a more intense experience than most. However, improvement and after that can be sustainable. If I remember correctly it has CFSApparently I have been inactive in reddit for too long and my old account has been erased. Oops. Advanced apologies for a long post. I've had fibrosis for a decade, although I only received a diagnosis a few years ago. Since then I have been organic, and I have eliminated harmful or artificial chemicals in the house. This helped a little, but it's not enough. This was not a placebo effect. I did it for about two months before going to a day trip where I ate regular meals and unexpectedly hit me as a load train. Only this week, I felt out of shape and decided to try Keto. I hadn't read anything about the diet regarding autoimmune diseases, etc... He was purely interested in his fat burning efficiency. I admit that I am naturally inclined to eat (almost) keto, anyway, but laziness and stress definitely got me strongly carbohydrates addicted to really unpleasant foods during the last year. The only symptom of the flu I had last week was fatigue, but it was like the fatigue of the couple of days. It's over the weekend, so I slept. This could be because he wasn't in ketosis yet. I thought I was doing a good job, but once I entered my information on a nutrient tracker, I was still a little high in carbohydrates in those days. I'm already feeling much better now, wise energy, carefully that I've been doing a lot of research and I'm starting to wonder if I really have SIBO. Have you considered this? I'm not going to have TMI in you, but I've had mild digestive symptoms for the last 10 years. I raised them with every doctor (probably 5 or more) and each one told me that if my body did that every day, it was just "my normal". I called a shit, and I thought it was all fibro-related, but now I'm thinking I had it wrong. There seems to be a fairly high correlation between fibroid and SIBO diagnoses, and SIBO symptoms and accompanying the leaky intestine make absolutely sense. I'd encourage you to take a look. I'm going to stop now because I feel like I'm shattering but I'm happy to answer any questions or discuss, at the best of my ability, if you want. Take care. Edit: All paragraphs were working together. I have CFS/endometriosis/other problems of chronic/autoimmune inflammation (manifests in different ways, 99% managed by diet, not enough symptoms to diagnose at this time). The pain I have is similar to the fibro, but I don't have the pressure points and my Dr doesn't think that's it. For almost a year I was quite lying, in the process of trying to diagnose I made some changes, I started to feel better, and as a result all the grains/sugar processed and most starchs were cut. I was strict bait for about a year and a half (and lost about 50 pounds), had some outbreaks, other problems, this and the other thing and ended up more primal (grain free, not refined sugar, some tubers, cultivated dairy) and kept under carbohydrate (~100g a day). The strictest keto is what I do when I want to lose a few pounds (~10lbs on a healthy BMI right now) but I can keep my weight (and my health) at ~100g a day without counting anything while there is no sugar / honey etc. or grain involved. It's been about 5 years since I started feeling human again, but it's not perfect - the finger diagnosis is new and I'm still learning to handle that. It's all about managing stress and inflammation for me. Currently the only drugs I take are for the endo when the pain is really bad, but at different times I have been in several NSAIDs and sometimes steroids. Cutting the grains is dehydrated from skin problems (and creams to treat them), muscle pains/joints and problems similar to IBS (but it wasn't IBS because I can eat broccoli and other "initiating foods" without problem...), cutting sugar, peanuts and uncultivated dairy helped with sleep problems and keeping my energy more level, as well as helping with all pain. One of the most important things for me to follow - more than grams of carbohydrates - is the protein. 70g a day, up to 90g a day if there's any kind of stress or if I'm having some kind of glow. The more tired/many I am, the more protein I try to get in. Protein is also important to keep my blood pressure and circulation going well (I have pins and needles in my hands and feet, and my nails and lips become blue, not fun). For me, intestinal health was important to also manage - probiotcos, fermented foods and resistant starch are all important. I also supplement the turmeric and ginger and have about 2 tablespoons of linen food every day. I also take epsom salt baths to help with pain and extra magnesium. I know that managing chronic disease - especially pain and fatigue - is very physical and mentally hard. Adding the stress of adjusting to keto is not easy - in your case making the transition slowly (cut the grains for a couple of weeks, then sugar, then lower the foothills) will probably help. Make sure you keep your electrolytes and monitor the protein. Add in vit d and omega 3s (both can be found in fish) is also useful. At this time, most of the time not as processed meals. There are some things I will eat occasionally that come in a box, but it's usually not worth it. My diet is mainly vegetables (brocoli, cauliflower, rope beans, greens, zuchinni are all favorites), eggs, meat, cheese and seeds. When I'm having an eruption I do my best to stay in my routine - a lot of slow walking, proper food, doing things that make me feel capable and productive. Manage the mental side is more difficult for me than to deal with physical symptoms at this point. I feel that this was really uncommon and perhaps not very useful - it is a bit of my experiences and how I managed it. Feel free to ask anything and I will answer as much as I can, or you can simply send me messages and tell me how much it stinks to be exhausted and buzzed at the same time (it is really the worst feeling in the world). I was diagnosed with Fibro for about 15 years and I just want to say keto helps. I've tried all the drugs on the market and they've never made a remarkable difference. The first 2 weeks of really staying are horrible, but I think it's more because, over time, people who suffer Fibro are conditioned to do anything we can to avoid/reduce pain, so suffering through a hard, flashing full 2 weeks seems crazy. But it really helps. Do you have any overweight? Going through life with less weight in your body really makes a difference. I always say that Fibro makes the pain of nothing and makes things really painful atrocious. So the "pain" that a normal person experiences when overweight is super magnified for us. Besides, I noticed other things too. I don't know exactly how your pain is manifested, but for me sometimes the pain in my back gets so bad that I would have literally breathing problems, just because I couldn't expand my seam enough to take air. I haven't experienced that once in a while in Keto. On the side of fatigue, before following with keto I had slept during the night only a handful of time during the course of 15 years, but in keto I slept during the night almost every night. This doesn't mean the pain goes away, it doesn't. That's not our thing in life. But it helps. Even a little less pain can make a big difference in your level of functionality. I can only encourage you to accelerate the tough couple weeks and see if you care. I don't have fibromyalgia or CFS, but I've met people with that and other autoimmune diseases, and I know they're miserable, so I feel a lot of the pain you're experiencing every day. Keto is not for everyone, but I have also seen that it helps many people with diseases that are difficult to treat. As always, people here can be very useful if you publish your macros, an overview of what you eat, and how you handle hydration and electrolytic intake. I hope you find good advice here. Try Lyrica for fibromyalgia. I had a form of nervous damage on my foot similar to neuropathy, and Lyrica reduced the pain a lot. MembersOnline

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